Welcome to the Western Washington State Marfan Syndrome Foundation. The state is divided naturally into Eastern and Western sections, with the mountains as the dividing line. The Foundation has divided along these lines as well, for ease of communication.
We hope to provide information, contacts, and support for persons and families in Washington State who are dealing with Marfan Syndrome.
Our mailing list is kept by Joan Moritz. You can write her at jzmoritz at attbi.com She will add you to the list, and you will be informed of news stories, potlucks, and items of local interest. She lives in Seattle, and will be able to refer you to someone there for questions.
I am Sally Tomson: stomson98003 at foxinternet.net. I live in Federal Way. Telephone 253-941-2523
We are very lucky in this area to be near University Hospital. 4245 Roosevelt Way NE Seattle (206)548-3300
On staff Dr. Peter Byers specializes in Marfan syndrome, and sees patients through the genetics clinic. Even when he is not available, the genetics clinic there is on top of things. They can be reached through UWMC's Medical Specialties Center at (206) 598-4615 for more information.
The National Marfan Foundation provides excellent information and Jeanette Navia's wonderful Marfan Life Website is so complete that the question we get most often is where to start locally - Diagnosis, treatment, and Marfan-familiar doctors.
The National Marfan Foundation does not endorse any specific doctor or facility. This is a list of doctors who are recommended by patients with Marfan Syndrome.
EDWARD D VERRIER, MD
EDWARD A GILL, MD
Dr. Art Resnick
Dr. Stanley J Stamm
University of Washington Medical Center
1959 North East Pacific Street
Seattle Washington 98195
Genetic Counselor: Robin Bennett
Dr. Peter Byers
Dr. Brian R Mckillop
Dr. Marr P. Mullen